La decimoprimera edición del Foro CDKL5 tuvo lugar en Boston, los días 27 y 28 de octubre de 2025. El Foro es una reunión anual que organiza la Fundación Loulou y en la que científicos y miembros de la industria farmacéutica se reúnen con representantes de la comunidad de pacientes para repasar los últimos avances en el campo.
Este es un repaso para los grupos de pacientes de las principales novedades del Foro CDKL5 2025.
This is a scientific summary of the 2025 CDKL5 Alliance patient conference celebrated in Rome. The CDKL5 Alliance is the umbrella organization bringing together national CDKL5 deficiency patient associations as well as affiliated organizations like the Loulou Foundation. The summary covers the scientific updates presented during the conference in June 2025.
For the past eleven years the Loulou Foundation hosts an annual meeting where scientists and drug developers working on CDKL5 deficiency, together with representatives from patient organizations, meet to discuss the latest advances.
Here are the main news and take-home messages from the 2025 CDKL5 Forum that took place in October 27-28 in Boston